VCFS

Sherry Baker-Gomez is the parent of a child with VCFS. Her son, now 25, was finally diagnosed with VCFS at 18 years of age after a long medical history and searching for answers. Sherry, herself, had been so desperate for answers after many years of struggling with her son’s undiagnosed disorder; that she became a nurse in an effort to understand the symptoms she saw in him and what they meant. Then she realized that many other parents needed answers and needed to know where to turn, so she began writing.

Sherry is determined to pursue the campaign for VCFS recognition, and make VCFS a recognized name in the community. This book is funded by her own funds, at her own risk, and is not sponsored by any institution or outside source. The information presented is the result of her own search for answers and resources. A portion of the proceeds from the sale of each book will be donated to organizations that benefit VCFS disabled children and adults.

What they are saying

"When I met Sherry 4 years ago, we *met* when she emailed the VCFS Educational Foundation, looking for information. She was too shy, then, even to give me her phone number via email, saying that she was a "scaredy cat" and would call me. One day the phone rang and this quiet, timid voice said, "Hello, Kelvin... this is Scaredy Cat" , and that was then. What a contrast to today's vibrant, dynamic Sherry Gomez -- "scaredy cat" no more -- who has overcome her timidity and blazed this information trail with her book, to help brighten the path for other parents and loved ones of children -- and adults -- with VCFS. She has done a GOOD THING, and without regard for personal inconvenience, to bring the VCFS community this work. When you read it, know that it represents not only a valued source of information and perspective, but also a tale of personal mastery for woman who used to be just a "scaredy cat." Sherry... congratulations. You followed through."

With great respect,
Kelvin P. Ringold
Administrative Assistant
VCFS Educational Foundation, Inc

"This essential handbook offers the reader an insightful look at the pivotal issues concerning 22q11 deletions. Hence, the author gives
us a thoughtful analysis of the clinical and the personal world of those dealing with this deletion. I commend her"

Paul Ling Tai M.D., author, surgeon, chemist, and inventor.

Michigan

"What a wonderful resource!! This sensitive, beautifully written and fascinating conversation with professionals, parents and caregivers is a true joy. Readers will find this book heart warming, enlightening and uplifting. "

Clare B. Jones, Ph.D. author, diagnostic specialist, and nationally recognized presenter. Scottsdale, AZ.

"I want to applaud the people who have work diligently to put together the information related to VCFS for families and healthcare providers. This should help the families cope with complex issues and systems. It should also enhance their ability to advocate for their children."

Martha Frisby - MHA-Children's Rehabilitation Services-St. Joseph's hospital, AZ

Ms. Gomez has gathered information on a large variety of characteristics associated with the 22q11.2 deletion and written about them in a way that is easy to read and understand. This book will fill a void in the libraries of families affected by Velo-cardio-facial Syndrome and will help parents ask the right questions of their own child's health care providers. It is a wonderful accomplishment.

Karen J. Golding-Kushner, Ph.D., Executive Director, Velo-cardio-facial Syndrome Educational Foundation, Inc.